This story is adorable.
So, a boy, Dylan Siegel, wanted to help his friend, Jonah Pournazarian. Here’s Jonah’s story:
If she doesn’t, Jonah could die because he has a rare form of glycogen storage disease, a hereditary disorder that means his liver can store sugar but can’t release it, causing him to have dangerously low blood sugar levels that can result in seizures or even death.
“She” is Jonah’s mom, who has to wake up in the middle of the night to check up and feed Jonah.
Now, Jonah’s doctor was basically out of funding money to treat this rare disease. And so, Dylan decided to step in.
He wrote a book called “Chocolate Bar,” and explained to his parents “chocolate bar” means “awesome” to him. “Disneyland is so chocolate bar,” the book starts out. The last page says, “I like to help my friends. That is the biggest chocolate bar.”
Dylan’s project raised more than $750,000 in a little more than a year by selling the books for $20 each in all 50 states and 42 countries. Every cent goes to Weinstein’s lab.
This kid wrote a book and raised all of that cash. In fact, Jonah’s doctor had this to say:
“He’s raised more money for this disease than all the medical foundations and all the grants combined. Ever.”
Who says kids can’t do great things?